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From Marc Perkel <>
Subject OT - Possibly some good news
Date Tue, 04 Jul 2017 15:45:09 GMT
I know this is off topic, but it is looking like I might not die from 
cancer after all. At some point I'll write something up about how the 
immune system is like a spam filter. But today - I think I might have 
cured my incurable cancer.

As you all know from my previous announcements that I have been working 
on designing a custom immunotherapy treatment that has never been tried 
before, and the hard part as usual, getting the doctors to do it. Well - 
I finally got the treatment and - it appears as if it worked. And I 
stress the word "appears" because it's looks like it's going to take 
about 2 months before imaging is going to show what's happening. But my 
cancer symptoms are gone.

I am in a state of stunned disbelief. Too early to believe it - too late 
not to believe it.

On Monday June 19 I got an infusion of ipilimumab which is an 
immunotherapy drug. 2 days later I got a series of 3 radiation 
treatments (21st thru 23rd). Dosage, 3 fractions of 9gy xrays from 
Varian Trilogy set at 9MV. These treatment we unusual in that instead of 
irradiating the whole tumor, I asked that they just burn a disk in the 
center of the main tumor leaving the rest of the tumor undamaged. This 
request was very counter intuitive in radiology because they are trained 
to kill every cancer cell they can possibly hit and it took a lot of 
work to get them to deliberately leave tumor undamaged.

But that was important because I was turning the tumor into a school, 
not a battlefield, where I was teaching my immune system what the cancer 
looked like (antigens) and classify it as an enemy. By using partial 
radiation I created an environment where white blood cells in my immune 
system could interact with dead cancer and learn it.

4 days after treatment I started getting a reaction. I was queasy, low 
energy, aches and pains, chills. Wgen I got home I had a fever of 101, 
and it occurred to me, is this the fever I was hoping for?

Fever indicates that I'm having an immune response. My immune system is 
fighting something. Was it attacking the cancer?

So I took a hot bath and used a heating pad to increase the fever and 
got it up to 103. I wanted to create heat shock proteins and signal the 
battle was on. Wednesday still had fever and was rather out of it. 
Thursday morning fever broke and all my cancer symptoms were gone.

I have aednocarsonoma and the aedno part of the name means "mucus 
secreting". On Thursday the mucus went to almost none. I had been 
coughing up a lot even before I was diagnosed last August. I went out 
and sawed limbs off a tree, hard work, and didn't cough up anything. At 
night when I lay down and in the morning when I get up, almost nothing. 
Energy is good. On Saturday I did a 4 mile hike. 2 miles up hill and 2 
down. It was like walking up the stairs of a 60 story building, but 
without the stairs. Yes I was out of breath and I coughed, but didn't 
cough anything up.

If I have a mucus secreting cancer and have no mucus, is the cancer 
dead? Why do I no longer have symptoms?

However ...

I have no hard information and I don't actually know what happened but 
something extraordinary occurred and it is so easy to want to declare 
victory, but the easiest person to fool is myself and I would like to 
see a doctor with a before and after image showing the cancer gone. I 
don't have that and I'm not going to get it soon. So - stunned disbelief 
is as good as it gets, for now.

I have to say that although I knew this should work, I didn't expect it 
to actually work. I thought the most likely outcome was failure. And I 
definitely didn't expect that I might have gone from having cancer to 
possibly cancer free in just 10 days. I had planned to repeat this 
process at least 2 more times changing the radiation and drugs around. 
But now I don't know if I have any live tumor to attack anymore and no 
point in hitting dead tumor with xrays. At this point there are no plans 
for any future treatment.

Often when the abscopal effect occurs it is a "complete response" which 
means cured. My immune system might kill every last cancer cell. And I 
may have created a vaccine against my own cancer which will prevent 
recurrence. Note the word "may".

The implications are stunning. If this did work it could work for any 
cancer for anyone. It's all low tech off the shelf stuff where the 
secret sauce is timing and partial radiation of the tumor. Did I find 
the cure for cancer? Might be a Nobel Prize in it for me and a movie 
about my life. I'm thinking Hugh Jackman can play my part, but this is 
the optimistic thinking I'm trying to avoid.

Anyhow, I'm still trying to wrap my head around the idea that I might 
not die soon. And also wondering if I missed something and I just kicked 
the can down the road. But I'm 11 months into a cancer where median 
survival is 8 months and I'm still climbing mountains 3 months past my 
sell by date. So that in itself is victory.

I will write more when I find out more.

Marc Perkel
Random Genius

Marc Perkel - Sales/Support
Junk Email Filter dot com

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